Beginning the Chondrosarcoma Journey

Beginning the Chondrosarcoma Journey



Chondrosarcoma can be located in the body anywhere cartilage is found. The adult human skeleton has 202 to 206 bones, most of which have cartilage. Though some locations are more common than others. Most are commonly found in the pelvis, rib cage, arms, and legs.Although any bone can be affected, the long bones (legs, arms) pelvis and shoulder blades are the most common. While the face and skull are generally unaffected, it is not unheard of. Occasionally chondrosarcoma has been found in the spine, fingers or toes. It is extremely rare to find chondrosarcoma in any internal organs. If Chondrosarcoma metastasizes, it most frequently spreads to the lung.


If Chondrosarcoma is found in the skull it is usually found in the skull base, beneath the brain, or near the orbit of the eye, or behind the sinus cavity, occasionally in the jaw. 

See this list for doctors qualified to treat chondrosarcoma of the skull.

See this list of Otolaryngologist/Ent Surgeons who can treat chondrosarcoma of the sinus cavity or larynx


If Chondrosarcoma is found in the region of the neck, it can be located in the cartilage of the larynx, (hyoid or cricoid) or the cervical spine.


Chondrosarcoma is more frequently found in the upper arm, (the humerus). It is less frequently found in the forearm where two bones are located, 9the ulna and the radius). Very seldom is it found in the hand or fingers.


Chondrosarcoma can be found in the upper leg, (thigh bone) medically known as the femur. If the tumor is located high up on the femur near the joint of the pelvis, people often mistakenly say the tumor is in the hip. This area is called the proximal femur. The lower part of the thigh bone is called the distal femur.

The part of the leg that is below the knee has two bones in it, called the fibula and tibia. Chondrosarcoma is located here less often than the femur. Again, the upper parts of these bones are called the proximal and the lower part is called the distal. It is very seldom found in the foot.

Chondrosarcoma can be located in any of the vertebrae from the neck all the way down to the tail bone.

Trunk of body:

There are many bones that make up the trunk of the body. Chondrosarcoma can be found in almost any of them. Some locations are less affected than others.

Scapula (shoulder blade)
Clavicle (collarbone)
Sternum (holds the rib cage together)
Pelvis (made up of ilium, ischium, pubis and acetabulum) 

Return to Questions 


Anonymous said...

I was diagnosed yesterday. The chondrosarcoma is in my right index finger. Amputaion is th recommended treatment. Is that common?

Elizabeth Munroz said...

It's not uncommon for amputation to be the treatment for chondrosarcoma. In fact, a few decades ago it was considered to be the only treatment. These days with improved diagnostic tools and surgical techniques more "limb salvage" surgeries are done. That being said, it may be that the tumor, at this point cannot be easily treated in a limb salvage procedure, depending on it's size, grade, and how far extended it is. If tumor is not completely removed, the chance for recurrence or spread is extremely high. Two things you can do. 1) Get a second opinion at a University medical center that has a Sarcoma clinic. 2)Ask yourself if keeping your finger is more important than living.

Anonymous said...

Thank you so much for your hard work thru the years to provide the information provided. I was diagnosed on 06/18/2012. My stage II chondrosarcoma is located on my left heal bone (calcaneus). I know its a weird spot and the possibility of loosing my foot is great. Just wanted to say thank you for all the info and I'm really happy to have found your blog....

Elizabeth Munroz said...

I'm sorry to learn of your diagnosis, and especially the possibility of amputation. That is a very real concern with Grade II chondrosarcoma tumors in the foot. Though it may seem to be a drastic treatment. Surgery is the only treatment. If the diagnosis has happened early enough and the amputation is clean, that should prevent any further recurrence or metastasis. For me, the decision would be challenging, but when it comes down to the reality, it's the foot or life. I hope your healing and recovery go well, so that you can go on to live life to the fullest.

IceFighter said...

In April, I was running while over-striding into a mini pothole my right knee popped in the front mensicus area producing a compound bucket handle tear. Also, on the lateral/posterior side, I felt a bone chip type clicking with a deep torch like burn from lateral to medial side making me do 2 somersaults bc of the loss of stability... Instantly, my right knee swelled up bigger than the size of my head. I had to hop back home on my left leg... I have had 7 knee operations 5 left (meniscus repair, cartilage clipped, mcl repair, 3 OCD repairs) & 2 right (mcl, cartilage repair)... this injury felt like none of the above. MRI showed - compound bucket handle tear and a baker's cyst on the posterior side near pcl... surgery in june - cartilage area felt better but back of knee felt dead... month goes by and got released felt better but not healed in posterior side... late july swelled up the size of a head again and continued getting bigger... mid august drained 60 cc's off the knee - yellow inflammatory fluid... a wk later drained 55 cc off same area but this time dark yellow fluid with cartilage/bone flakes... they sent it to lab and lab came back negative - no infection and white count was normal... recently had my 3rd mri 2nd in a month - results show nothing more than inflammation... the pain is medial, lateral, posterior parts of knee - it band area super tender w/ bruising... pain is climbing into my quad/femur and down in my tibia/fibula... I started seeing the best knee specialist in Oklahoma since mid august... I haven't been able to run or bend knee since april - I coach and am highly active... family history of cancer: my mom (6 cancers 4 thyroid, 2 skin), gpa (leukemia), gpa2 (colon), gma (leukemia)... with this being said - should I be concerned with any bone / cartilage sarcoma? My knee has progressively gotten worse in posterior/lateral side since april... What do you suggest? I played college football and wrestled all my life - high pain tolerance / toughness but I cannot kick this... keeps getting stronger and more unbearable... any help would be greatly appreciated... thanks so much for your guidance!

Elizabeth Munroz said...

So sorry, IceFighter, that you have been through that. To assure you, having a history of cancers in your family doesn't pre-dispose you to chondrosarcoma. If you are in the care of the best knee doctor, then he would know if you had any signs of CS or not. If you would like to communicate further, you can email me at chondrosarcoma underscore care at yahoo dot com

Yimin said...

Dear Elizabeth,

I am Yi Min. I stumbled your blog about sarcoma disease. Right now my mum is suffering from chondrosarcoma where by there's a lump on her chest and fracture bone on the leg. My mum feel slightly uncomfortable near her chest few months ago but there was no lump. We only aware of the lump after a few months. My mum is seeking for an oncologist in Universiti Malaya Medical Hospital which is located at Kuala Lumpur, Malaysia today. Malaysia doesn't show much cases about such cancer and we need professional's advice on this. Hopefully there will be some doctors treating such disease willing to share knowledge about sarcoma disease with the doctor over Universiti Malaya Medical Hospital. Hope i can get your feedback soon. Thank you.

Elizabeth Munroz said...

Sarcoma is rare no matter what country one lives in, and most doctors are not going to have many sarcoma patients. In Kuala Lumpur at the hospital you mention and if your mother has a bone sarcoma this is where to start:

Anonymous said...

My daughter was diagnosed with a grade 1 chondrosarcoma of the rt. scapula at the age of 7 in 1999. I know how rare that is for a child to have this. She had her scapula removed at the mayo clinic in Minnesota. She has had no problems until now. She is now 21 and has developed a mass at her clavicle. She is going to the dr. this week. After all these years, how common is it to have a reuccurance? Any information that you could give me would be greatly appreciated.

Unknown said...

I don't know if I'm right asking here,but I'm beside myself with worry,for the last year I have had upper leg/thigh pain and into the hip area which is very painful especially at night,I have now developed a limp,but I'm now worrying due to me having a tender spot on my rib and shoulder at the back,these hurt painfully when pressed lightly,I'm generally fit but last fortnight have suffered really bad with nausea but I haven't been sick,my Dr is a relaxed person and says everything is fine,I'm 42 male,I'm don't know if anyone else felt they knew there condition but I really believe this to be cancer,I'm scared usually quite a tough person,I'm also have pain behind my knee,would any of you lovely brave people say I they had similar symptoms and feelings thank you in advance Phil

Elizabeth Munroz said...

Dear Unknown, I appreciate your concerns. but, I believe you are asking the wrong person. Chondrosarcoma is a singular tumor and would not be in multiple places in the body. The best way to be diagnosed is to see an orthopedic doctor, then have an xray of the affected area as a start, then if tumor is found, a biopsy, then if it is found to be malignant, surgery to remove the tumor. I suggest you advocate for yourself more firmly with the doctor, or find another one that will be able to answer your questions.

Max Culverhouse said...

My wife had a benign chondrosarcoma in the upper left femur, the have operated and removed it leaving a large margin, do you think that it will be necessary to now undergo radio treatment or chemotherapy? You opinion in this matter would be greatly appreciated, thank you

Elizabeth Munroz said...

It's not given for low grade "conventional" chondrosarcoma. I'm presuming that's what you mean by "benign". Please understand that if the pathology shows that it is chondrosarcoma and not enchondroma, then it is malignant... a cancer.

Gaurav Rawat said...

Hi Elizabeth,

My Mom was diagnosed with Chondrosarcoma in 2011 in the femur bone. She underwent multiple surgeries due to reoccurrence . Last surgery was in lungs in February 2016 as it had metastasized. Just last month Chondrosarcoma appeared in her pelvic bone and she now was 2 fractures in Ischium bone and pelvic crest. She is in India and while we are waiting for doctor's advice I was wondering if its possible to get a doctor's opinion ( second opinion) here in us without her being here. Can I take the reports and get an second opinion ?

Elizabeth Munroz said...

If you go to the Musculoskeletal Tumor Society website and do a search for qualified sarcoma surgeon, you can learn which ones might be able to accommodate your request. Here is the link:

Tipsie Gadley said...

I Had Chondrosarcoma in the small bone in my left forearm.....I had surgery in May 2016 to remove 2/3rds of the small bone in my left forearm and replaced it with 2/3rds of the small bone from my right leg......Still in the recovery process!!!

Fizza Max said...

Hi,My mum went for a regular check up, where a mass was found invading her 9yh rib.The Doctors did ultrasounds,CT scans,MRI,Bone scan.The result of bone scan showed that the tumor was not spread in rest of her body. It was just invading the rib cage. Doctors suggested resection and reconstruction.The needle biopsies done before the surgery were not clear.However ,after the complete removal of the mass, they sent frozen samples of surrounding tissues which showed that it was not present their either. The results of incisional biopsy show that she had chondrosarcoma grade II. Now doctors for the sake of follow up and to prevent recurrence would tell certain measures. I wanted to know that wheather chemo or radiotheraphy would be necessary,and what are the chances of recurrence of this grade of sarcoma.

Elizabeth Munroz said...

Hello Fizza Max,
I'm sorry to learn about your Mum. I hope her recovery goes smoothly. To answer your question. Chondrosarcoma is one of those rare conditions where radiation and chemotherapy do not work. Sometimes an even more rare kind of chondrosarcoma might respond to radiation (seldom chemo), but it is so rare, you would already know that by now. Grade 2 is a bit more aggressive... fast growing than Grade 1. It is very important for your Mum to go back for follow up xrays and scans as are ordered by her consultant to make sure it does not grow again. If it does, the sooner it is taken care of, the better. Any further surgeries are usually less invasive than that first one.