Beginning the Chondrosarcoma Journey

Beginning the Chondrosarcoma Journey


What are the chances for full remission, cure and survival?

The chance of recovery, (prognosis) depends on the type, location, and stage of the tumor. The chance of recovery also depends on the age, size of the tumor, stage of development, and general health of the patient.
In the year 2000, about 2,500 new cases of cancer of the bones and joints were diagnosed, and about 1,400 deaths from these cancers were the expected outcome. Primary cancers of bones account for less than 0.2 percent of all cancers.
What are the percentages of cancers that are bone cancers?
Osteosarcoma is the most common primary bone cancer (35% of cases)
followed by chondrosarcoma (26%)
Ewing's tumor (16%)
chordoma (8%)
malignant fibrous histiocytoma/fibrosarcoma (6%)
Several other more rare cancers account for the remainder of cases.
The long term prognosis for people with primary bone cancer varies greatly, depending on the specific type of cancer and how far it has spread. If you have questions about your personal chances of cure of bone cancer, or how long you might survive such a cancer, it is always best recommended to talk with the people who know your unique circumstances best - your Musculoskeletal or Orthopedic Oncology care team.


HowKinns said...

Over eighteen months ago I diagnosed with what was thought to be a benign tumour on rib 3 of my left chest. A year later the tumour had grown substantially in size, now involving ribs 2, 3 and 4, and it's nature was thought to have changed to low-grade malignant. Two weeks ago the tumour and parts of three ribs were excised, and a shaped proline prosthesis used to provide structure to my left chest wall. I was told to expect pain after surgery, and went to the theatre, knowing that the opeation had to be done, but feeling apprehensive. After four hours in surgery and one hour in recovery I was back in a normal ward. My pain medication comprises 600mg paracetamol four times day and one Targin 10/5 tablet twice a day. My pain levels have never been high, the medication providing adequate control. I am writing this message because I had read some reports of expreme pain, but my experience has been to the contrary. I am able to take deep breaths without any more than slight discomfort, and manage to get four to six hours sleep, upright in a large lounge chair, each night. I will add to this message as my recovery progresses.

Elizabeth Munroz said...

I am so grateful for your side of the story! Others need to know that it is not all gloom and doom. It is too bad that you were first thought to have a benign condition, though it is common to have that happen. It's very difficult to discern the difference until the tumor shows active growth as it did in your case. Thankfully, you went back for follow up. Surgeons are getting more expert in efficient removal and repair these days. Pain control and recovery such as yours is more common than not. Thanks again. :)

James Rey said...

Hi Elizabeth,

My name is James Rey and I am from near London in the UK. I was diagnosed in Dec 2014 with a chondrosarcoma which had been there since 2013 at least. It was very large by the time it was finally found on an MRI scan. I had a 13 hour operation to remove the tumour and two spinal vertebrae plus around five rib sections. In May 2015 I was sent by the NHS to Jacksonville, Florida for proton beam radiotherapy. Unfortunately recurrence was detected in September 2015 and then metastasis to the lungs was detected in November 2015 and also a patch at the top of my left leg around the hip which caused me pain in the left leg. I have been doing 'alternative' treatments for a couple of months now, including the Budwig diet, apricot kernels, curcumin, juicing fruit and veg every day, using supplements etc, I was just wondering if you had any tips on things that are good foe chondrosarcoma specifically?

Thanks a lot and thanks for putting up this site, great help.