Three girls affected by Sarcoma. How will it affect their lives?

The one with her feet up in the air has a Daddy with Chordoma, a rare form of sarcoma, which up until recently was considered to be "benign" by the medical community. With many surgeries and recurrences located in the base of the spine, sacrum, cervical spine or skull base, those with Chordoma have had little hope for cure. Not all, but a certain percentage of Chordoma patients have inherited their cancer from their parents.

The girl in the blue has had her childhood marred and interrupted while her little sister went through spine surgery, radiation and chemo. How does it affect a six year old to be left out of the loop, so to speak? Her parents and sister going off to the hospital all the time. Her little sister in pain, being nauseated, going bald, getting, (what seems to her), all the attention. And, it is not over when little sister has to keep going back to the doctors and hospital for many follow up appointments, for repeated fearful anxious days as everyone awaits the news whether there is a recurrence or not. What's it like to have little sister still having pain for the rest of childhood?

The littlest one had her placental umbilical chord frozen to keep until such time as her big sister, (not shown) might need a possible chance at survival for her Mesenchymal Chondrosarcoma. She doesn't know what an important part she has played in the life of her family. Right now there is no stem cell cure available for that very, very rare bone cancer.

Hopefully, her big sister will never need it. But, who knows what the future will bring?