Survived 2B Alive

We can make a difference, one person at a time.

Since only 1% of all cancers in adults are sarcomas, there is very little professional interest or research funding in creating a cure. In children it is 20%. Comparing the percentages of other "well-populated" cancers, funding for research is aimed elsewhere. So, other cancers get the opportunity to have new treatments available. Many cancers that were deadly forty years ago when I was first diagnosed are now treatable. In fact many of them have a cure. Little progress has been made in the field of sarcoma.

How many types of sarcoma are there? Good question.

I could say the answer is unknown, and I suppose that is officially true. The question has bothered me for some time and I set out more than once to learn as much as I could.

I came up with a list and shared it with some friends. Later, I misplaced the list, somewhere in the storage banks of my computer. Today I noticed it and decided to post it before I forget and lose it again.

This is the list as it stands at the moment

Team Sarcoma

As a forty year survivor of Chondrosarcoma, this is one woman's quest to make a difference in the world, overcome her physical challenges from internal hemipelvectomy, and to encourage Sarcoma Awareness and Research Funding through Team Sarcoma participation. Each entry is dedicated to another Sarcoma patient. If you know someone who has a Sarcoma diagnosis, please share this blog with them. Though Sarcomas are rare, no one needs to go through this alone. There are support groups available. There is information to be gained, and others who have been down that Sarcoma path.

How many Sarcoma types?

Most reports say more than fifty types of soft tissue sarcoma have been documented. Each must be individually researched, evaluated and treated. When you add solid tumor, and bone sarcomas to that, the number of types increase. I once spent a day or so researching how many sarcomas there were. From various sources: World Health Organization, bonetumor.org, and PubMed, I was surprised at the total. After a little elimination process for sarcomas which went by two different names, the list was verified by a musculo skeletal tumor specialist, and the final count was 79 distinct types of sarcomas

Survived 2B Alive

We can make a difference, one person at a time.

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