Survived 2B Alive

We can make a difference, one person at a time.

Since only 1% of all cancers in adults are sarcomas, there is very little professional interest or research funding in creating a cure. In children it is 20%. Comparing the percentages of other "well-populated" cancers, funding for research is aimed elsewhere. So, other cancers get the opportunity to have new treatments available. Many cancers that were deadly forty years ago when I was first diagnosed are now treatable. In fact many of them have a cure. Little progress has been made in the field of sarcoma.

A number of people have been asking for details about the 2008 Team Sarcoma Bike Tour which is part of the 2008 Team Sarcoma Initiative. You may know, it is an internationally coordinated set of events to raise awareness of sarcoma and raise funds to support sarcoma research, clinical trials, and patient and family services.

Those who have been on one of the Team Sarcoma Bike Tours can tell you what a very special week it is.

The 2008 Initiative consists of the "core" Team Sarcoma Bike Tour (which will be held in Germany and Austria biking along the Danube River from Passau, Germany to Vienna, Austria during July 12-19, 2008) and various local Team Sarcoma events that will be held worldwide during the same week.

Here is where you can learn more about the Team Sarcoma Bike Tour.

If you would like the multi-page (more detailed itinerary), please send a request to Bruce Shriver by an e-mail message to info@liddyshriversarcomainitiative.org

Each day, team members have a choice of three programs: one designed for strong cyclists, another for leisure cyclists and the third for those who would prefer to walk or hike.

Team Sarcoma

As a forty year survivor of Chondrosarcoma, this is one woman's quest to make a difference in the world, overcome her physical challenges from internal hemipelvectomy, and to encourage Sarcoma Awareness and Research Funding through Team Sarcoma participation. Each entry is dedicated to another Sarcoma patient. If you know someone who has a Sarcoma diagnosis, please share this blog with them. Though Sarcomas are rare, no one needs to go through this alone. There are support groups available. There is information to be gained, and others who have been down that Sarcoma path.

How many Sarcoma types?

Most reports say more than fifty types of soft tissue sarcoma have been documented. Each must be individually researched, evaluated and treated. When you add solid tumor, and bone sarcomas to that, the number of types increase. I once spent a day or so researching how many sarcomas there were. From various sources: World Health Organization, bonetumor.org, and PubMed, I was surprised at the total. After a little elimination process for sarcomas which went by two different names, the list was verified by a musculo skeletal tumor specialist, and the final count was 79 distinct types of sarcomas

Survived 2B Alive

We can make a difference, one person at a time.

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